Mental Health Awareness Month

by TGHN Editorial
7th September 2018 • 0 comments

What Drives Academic Data Sharing?

by Benedikt Fecher, Sascha Friesike, Marcel Hebing

!Based on a systematic review of 98 scholarly papers and an empirical survey among 603 secondary data users, we develop a conceptual framework [of data sharing] that explains the process of data sharing from the primary researcher’s point of view. We show that this process can be divided into six descriptive categories."

3rd April 2018 • 0 comments

We have to learn as much as we can about the benefits, risks, costs, and appropriate role of disclosing participant-level data, in service to the ultimate goal of honoring each trial volunteer's altruism.

22nd February 2018 • 0 comments

Access to regulatory data from the European Medicines Agency: the times they are a-changing

by Beate Wieseler, Natalie McGauran, Michaela F Kerekes, Thomas Kaiser

a milestone for data transparency in clinical research is within reach- it is hoped this is not unnecessarily delayed.

22nd February 2018 • 0 comments

Jimmy Whitworth calls for a more sustainable and palatable pathway be will to build consensus and to create a broad coalition.

22nd February 2018 • 0 comments

Mark Walport and Paul Brest argues that we need to ensure that research outputs are used to maximise knowledge and potential health benefits

22nd February 2018 • 0 comments

In this paper, Andrew Vickers argues that attitudes towards data sharing in the clinical trial community need to rethought, drastically

22nd February 2018 • 0 comments

A systematic review of barriers to data sharing in public health

by Willem G van Panhuis, Proma Paul, Claudia Emerson, John Grefenstette, Richard Wilder, Abraham J Herbst, David Heymann, Donald S Burke

This study looks at the challneges of data sharing globally. 

22nd February 2018 • 0 comments

Publishing the results of all clinical trials, whoever funds them, is required for ethical, scientific, economic, and societal reasons

22nd February 2018 • 0 comments

Prepublication data sharing

by Toronto International Data Release Workshop Authors

Rapid release of prepublication data has served the field of genomics well. Attendees at a workshop in Toronto recommend extending the practice to other biological data sets.

22nd February 2018 • 0 comments

Sharing health data: developing country perspectives

by Viroj Tangcharoensathien, Jirawan Boonperm, Pongpisut Jongudomsuk

Sharing data is not only about the technical dimension such as data management, repositories and libraries; developing countries are concerned about factors that impede data sharing, in particular, fairness

22nd February 2018 • 0 comments

Comparing potential commercial interests with seven specifications of relevant public interest reveals the lack of proportionality inherent in the current practices of EMA and NICE.

22nd February 2018 • 0 comments

John A. Spertus suggests that there needs to be some consideration about the practicalities of data sharing- in how it is shared, investment, and ensuring that data are appropriately analyzed 

22nd February 2018 • 0 comments

This article argues that scientists need to feel greater urgency to share their findings quickly, and they need additional avenues to facilitate this process.

22nd February 2018 • 0 comments

This paper summarises major developments in clinical trial transparency between January and June 2013 and analyses the composition of datasets released by GlaxoSmithKline.

22nd February 2018 • 0 comments

This article looks at the benefits of data sharing, and argues for increasing the accessibility of data

22nd February 2018 • 0 comments

This article details the procedures and requirements for researchers in sharing data from clinical trials. 

22nd February 2018 • 0 comments